Understanding CP

When I was a kid in the 1970s and 80s, I really didn’t know anyone my age with a disability. I certainly didn’t  know anyone with cerebral palsy. 

Thankfully, most kids today can’t say that. 

Children with disabilities are now included in most public schools, welcomed to varying degrees in community camps and sports leagues, and accommodated in many places of worship. 

Andrew's siblings and their friends got up close and personal with CP and other developmental disabilities because of him and his friends. And although these experiences were sometimes emotional and challenging, I truly believe we are all better people today because of that we've learned — about patience, perseverance, being pissed off, forgiveness, acceptance, and so many other important aspects of life. 

Although we still need to better serve young people with disabilities at school, in their communities, and in the workplace, I’m hopeful that society is increasingly eager to understand and support people with special needs.  To recognize that “normal” isn’t always “better.” To know that everyone has gifts and talents, regardless of how complex (dare I say “challenging”?) they may seem. 

Learning to love and support each other is a lifelong journey, no matter our abilities.

In celebration of learning, and National Cerebral Palsy Awareness Day (today!), I asked some folks with CP what they’d like people to know about this condition. These thoughts are shared  below, along with some basic facts about cerebral palsy -- because we all can learn something new everyday:  

•  Cerebral Palsy (CP) is the most common motor disability in childhood (about 1 in 345 children in the U.S.) and is caused by early brain injury or abnormal development. 
•  Symptoms vary widely—ranging from mild coordination challenges to needing full-time physical support with daily tasks like dressing, eating, writing, etc.
•  Fatigue is common and often invisible—routine activities may require significant effort.
•  Adults with CP are a growing population, yet services often remain child-focused.
•  “CP is one part of who I am—not the whole story.”
•  “Give me time, or ask how I prefer to communicate. Just because I speak differently doesn’t mean I don’t have intelligent thoughts.”
•  ”Include me in conversations and make eye contact with me. I’m comfortable with myself. You don't need to be uncomfortable." 
•  “Stares, talking over me, or speaking to someone else instead of me hurts.”
•  “My life can be full and meaningful. I have dreams and goals, not just limitations.”
•  “Being invited, considered, and welcomed makes me feel good. Don't be afraid to include me.”

Andrew proudly sings during the seventh inning stretch at Yankee Stadium (in his standing wheelchair!).